Showing posts with label Dealing with Loss. Show all posts
Showing posts with label Dealing with Loss. Show all posts

Asher Daniel Chappell

Posted by  | Thursday, August 14, 2008  at 1:46 PM  


We wanted to post an update for our readers. A few weeks ago, we were blessed with several amazing women who shared their testimonies with us. One of those was Casey Chappell. You can read her post here. Her son, Asher Daniel, was born on August 9th. He was able to meet his parents and take a few breaths on his own. Praise the Lord for his sovereignty and this sweet blessing.


Casey and her husband wrote the following on their blog:


"Give thanks to the Lord for He is good, His Steadfast love endures forever. We desperately need this truth to sink in today. The last week has been filled with hope and with new plans to ready the arrival of our Son, Asher. Yesterday was a suprise to us, but not to God. God brought our precious boy into this world @ 9:08pm and took him to be in the arms of Jesus shortly after. We do not understand fully through our pain, but our only real comfort is also our only hope: That God understands the death of His Son and that death has also brought us life and is giving Asher the chance to dance right now. "


Please join us in praying for Casey and her family.

Sufficient for Today

Posted by  | Friday, July 18, 2008  at 9:55 AM  
Hi, My name is Casey Chappell and I'm a friend of Hollie's. First I just want to say a public thank you to you POH Ladies who have been so faithful in writing on this blog. What a blessing it is to so many. Thank you!!
Secondly, I want to thank each of the ladies who have written and shared the depths of their soul this week. I've learned so much and I know your words will continue to impact my life in the next few months... even years.

I am writing during this "Dealing with Loss" week not because I've had a miscarriage or a loss but because I've been told that I will most likely have a loss in the coming months. My husband Dan and I found out we were pregnant on Christmas Eve... well, I found out then and then waited to totally surprise my husband on Christmas morning! I still can't believe I kept it in those few hours, but it was totally worth it!! We were both so happy! ....fast forward past those first few months that every woman deals with normal fears of miscarriage, and so many potential unknowns that we have no control over. {If you are reading this and are in those precious early weeks of pregnancy, those fears are not to be minimized by what others may be going through but are rooted in the same sin of fear that each of us have had to face even when nothing was going wrong... fight it now, because it will not go away just because you have a great pregnancy and delivery... it
will continue to take hold of your heart and rob you of years of peace...fight fear mommies and rest assured by a God of peace!} well, we made it to 20 weeks, "what? we can't see the gender? That baby just doesn't want us to know I guess. let's try again in a few weeks... still, no clear shot of boy or girl.... ughhh..." So in our search of this child's gender we headed to Prenatal Peek in Durham. And you'll never believe that they saw us 3 different times trying to find out what this child was (they kept saying that the baby was so curled up and sitting so low that they couldn't see anything) Finally, our last try... The lady who was doing the ultrasound kept looking and looking and I thought her frustration was due to the fact that she was failing to answer the question on our minds. But we found out the next week that she was upset because she was seeing something that the Dr.'s and past ultrasound techs missed and it wasn't good. So she called
our OB and they called us and scheduled a level two scan and indeed we found out that our baby had a giant omphalocele and most likely a lethal Trisomy. We couldn't believe our ears... it had been such a perfect pregnancy so far, how could this be happening to us at 28 weeks?

Since that day we have been thrown into a world of high tech medical scans, heart echos, genetic counseling, sobering talks with Doctors, NICU tours, and hospice packets. We are told no matter what our baby ends up being born with, we have a long road ahead of us and a high chance that our baby will only be with us for a short time, if the baby overcomes the 50% chance of being born alive. Talk about HOPE ladies, I don't think I have truly hoped and prayed for something like I have been the past 5 weeks. My prayers have been very much like:

God Please Heal my Baby Totally....

But if not totally Please Heal the Trisomy....

But if not Please let my baby live for a while so we
can know him or her....

But if not Please let my baby live for a few hours so
it can be held and talked to and kissed on...

But if not Please let my baby live till it's born....

But if not Please let my baby live a few weeks
more....

But if not Please let my baby live through
tomorrow....

But if not Hold me tightly so I can live through
tomorrow!
Amen.

That kind of brings our story up to present day.... you can continue to read our updates and get the full medical details at our blog. www.caseychappell.typepad.com/baby

But I do want to briefly touch on a few things that are currently helping me fight for daily faith and provide a future hope.

First, a theology of a Sovereign God. This has been something that for years I've been trying to really wrap my head around and now God is wrapping it's amazing truth around my heart. The fact that I can place my trust in a God who is totally in control and sovereignly ordains suffering in the lives of His children for His Glory and their joy is so comforting. That fact frees me from Fear, Guilt, Despair, Bitterness, Control, and Anger, and so many other sins that would be so easy to become engulfed by. It's a hard truth that so many don't understand and that many reject. But let me say that He is a Good God who has every detail of this pregnancy and the life of this child ordained and for His glory. My husband wrote Here on this more extensively.

2 books on this that I have found extremely helpful:
Trusting God by Jerry Bridges
Future Grace by John Piper

Secondly, God's People have been so used to bless our lives and to encourage us and lift us up when we couldn't. They are prayer warriors on our baby's behalf and they are there to help us fight sin that can so easily seep in to our lives when we are weak. Many have asked us how we could be so open about all this while going through this trial and all it's unknowns, but we can't imagine not having so many surround us during this time. I encourage you, if you are going through a trial please surround yourself with God's People and call upon your Church to walk through this with you. You have no idea who will impact you and how many your struggle and story will impact as well. That is how God designed the church body to work. (I've found that when I'm not sharing my burden with my church Dan and I take out so much anger and frustration on each other, the Dr.'s, and even the ladies who check us out at the Dr.'s offices.)

2 Practical ways to live this out weekly:
Start a Blog: it will give your church body and family a way to read updates and your hearts cries in a way that prevents you from becoming tired of sharing your story over and over. Many need to hear it but we can grow weary in talking to others especially when you are being vulnerable. Great Blog sites: Blogger, WordPress, Typepad.
Place yourself in a small group or Sunday school class in your local church body: You may even have felt like you didn't fit in in the past or lacked the discipline to go, but there is something about a smaller group that allows them to really take ownership in carrying your families struggles and joys during a time of great hardship. There are so many aspects where a local church can help, from finances to medical connections to transportation to giving you scripture that you need to get through this time.

Lastly, The fight for faith is a daily one. I was telling someone, it's like I'm being told I'm going to have to go through something that I can only look at and say there is no way I can go through that. But God hasn't given me the grace to get through next week or next month yet. He's given me the grace and strength to get through TODAY... and often it has to be enough to get through this hour. I find that when I'm looking ahead and focusing on those coming trials that I am missing the present grace needed to speak rightly to my husband now, the strength to get my responsibilities for today done, the joy I have complete access to in order to endure with joy my pregnancy during it's 33rd week, and the desire to run to God's word for wisdom that I will need for a conversation later this afternoon with my neighbor. We miss out on so much because we aren't living in the grace provided for today. Which ironically is the same promised daily grace that will
be given to get through those coming days that we worry about and look to with dread. (Ref Mathew 6:25-34)

2 daily acts that will encourage this outlook on grace:
Listening to hymns are a great way to saturate your hearts with sound scripture and theology of this good sovereign God! Click here for some music I have found so helpful.
Rejoice in Today: do things that celebrate what today holds. (we can be tempted to live in the quest of something to come... healing for our child, a positive pregnancy test, our due date....) But God has given you today and given you what you need for today. So, parents-to-be, go do something that you won't be able to after the baby comes (dates, trips, salon visits and even grocery shopping) Are you waiting for healing or medical answers? there comes a time where you need to turn off the computer and stop researching for a day or more. Celebrate special days, birthdays, 100 days (in the hospital, out of the hospital, of life,) bring gifts to your medical staff or special people you meet through this. Here is an example of a couple who really celebrated each day! Can't make those two pink lines appear for anything? Go on Mission Trips. You won't always be able to do those and you are seeing the world. Babysit for others. That will keep your heart soft and your vision of what kids will be like in a right light.

A side note to those who may be presently walking through medical issues with your pregnancy, lack thereof, or with your children. I am so amazed at the technology out there and the medical minds that God has given these Dr.'s. But I am also astounded and horrified at the absence of the knowledge of God in most of these hospitals and Dr.s offices. Some times Dan and I feel like we are alone when we have to stand on our ethics and beliefs in front of these people. But we still stand. We have really found that you have to really question and research EVERYTHING they tell you in regard to treatment and procedures.... especially when you're dealing with an unborn child with a possible lethal condition. But Moms, God gave these children to you and you have to fight for them, even at times with those who are supposed to be the ones giving them the best medical care possible. The medical world often clashes with the theological world. Stay alert and seek advice from Believers who are in the medical world and from your Pastors. Stay true to your instincts. We have had to leave two medical practices because we did not feel as though they respected our beliefs and desires for this child. And though that was so scary to be out on a limb like that, it was such a great decision in the end. We have had to tell a Neonatologist that she was beating a dead horse in what she kept saying to us because we felt differently about a certain procedure and that we needed to move on to a different topic. We have had to cancel procedures that we had appointments for just because we didn't feel right about it and were not comfortable doing it. All those things are not easy to do when you have someone with a specialized medical degree telling you the opposite and saying that your reasons are not valid. But Please stand strong. You won't regret it and God will be your source of strength.

3 Websites I have found so helpful:
Wikipedia (so great for looking up definitions to just about anything!)
The Ethics and Religious LIberty Commission
A Great List of medications that have been researched on the effects of an unborn child

Thanks for reading this long post. I hope you have found it helpful and resourceful in walking through what today holds and will help to equip you in trusting in a Sovereign God who WILL sustain you in the coming days and months and until He returns. It has already reminded me and convicted me of areas where I fall short daily. Blessings to you all. Casey Nichols Chappell.

A God of All Comfort

Posted by  | Wednesday, July 16, 2008  at 11:59 PM  
My name is Pam and my dear friend, Krista, asked me if I would share the story of our loss this week. As I have read the heartfelt stories and grieved with and for three incredible women this week, I pondered upon what I should add or write and asked the Lord to give me insight on what to share with you. Each one of these women opened their hearts and shared the truth of what it truly means to feel anger, disappointment, hurt, and to be in despair, and in utter confusion. They also shared all of the wonderful statements and encouraging words that are wonderful to hear in a time of loss as well as hurtful ones. They have shared many of the same websites, scripture verses, and songs that helped my husband and me through our loss. So as the week progressed I continued to pray, “Lord, what would you have me share that would make an impact or touch the reader who needs it this week?” This is our story:

My husband and I found out we were expecting for the second time at the end of January (2007). We were ready to expand our family of three. God had already blessed us with a beautiful daughter and I was so thrilled to know that my heart’s desire was taking place and God was blessing us with another child. Our first few doctor’s appointments were normal routine visits. Everything in the pregnancy was going well and was completely normal. I was scheduled to receive my second ultrasound at 10 weeks 5 days, on March 1, 2007. At the time, I didn’t recognize God’s hand on that day, in that appointment, but as I have looked back many times and reflect on that day I see how He was at work. Andy, my husband, was unable to be with me at this visit due to work obligations. I was comfortable with that decision since we had done this before and things seemed to be going great. We got a call the night before my appointment that my mom and dad, who live 8 hours and several hundred miles away, were coming through town that day! My mom was so excited to be able to come to my appointment with me and see the ultrasound. We arrived at the doctor’s and things looked well with my weight gain and vital signs. The nurse asked the typical questions- “Any problems or complications we should notify the doctor about?”- “Any bleeding or cramping?” All to which, I answered with “no.” My heart was overjoyed as I knew I was about to see the little one inside of me. The doctor came in and started the ultrasound. He was smiling as he quickly found the baby. My mom and I saw the baby and were amazed at the growth at 10 weeks, 5 days of pregnancy. We were commenting on the tiny arms and legs and shape of his/her little head when I noticed the doctor’s expression change completely. He was no longer smiling and talking with us. I knew something had gone wrong. His face had dropped, he turned the screen away from me, and then he started to share with us that the baby no longer had a heartbeat. Although I was 10 weeks 5 days the baby only measured at 9 weeks 4 days. It appeared that I had lost him/her the week prior. My heart was shattered, my hopes, dreams, and everything I imagined for this little one vanished within a complete second. I was in shock to see this perfect little body on the screen and to know that he/she was no longer with us. My mom and I cried together as well as with the doctor. My mind began to flood with thoughts--How would I tell Andy? How would I move on without this little one? Why did he/she have to be gone? What did I do wrong? Why didn’t I have any signs that something was wrong? Why did I still feel pregnant? All of these questions filled my mind as I wondered if things would be the same again. As I look back, I see God’s hand at work on that very day, as He allowed my mom to be there, as He gave me a Christian doctor that experienced this type of loss personally with his wife who cried and prayed with us, and in the scheduling of having to wait only 2 days for my D&C. The following day my husband and I went to have one more detailed ultrasound to confirm the news that was given the day before and to help give him have closure and see our precious baby once more before the D&C. I am thankful that I only had to wait two days until my D&C. Those were the hardest, most agonizing days I have had to endure. Knowing our child was still inside of me, without a heartbeat, no breath of life, and that I was never going to meet him or her face to face. It was during those two days that I cried out to God. I was angry and wanted someone or something to blame. I doubted my faith and wondered why this had happened. What was I supposed to gain from this?

A dear friend of mine, who had personally gone through 6 miscarriages, called me up and said 3 things, “I love you, I’m sorry, and 2 Corinthians 1:3-7.”

“Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves received from God.” 2 Cor. 1:3-4
She then showed me every month how much she cared by telling us that she was thinking of us, praying for us, and grieving with us through cards, phone calls, e-mails, and simple words. It was two months later, Mother’s Day weekend, when she called and said, “Come to a memorial service honoring our little ones in Heaven.” At this service I finally felt closure as I prayed to the Lord, dedicated our little one into His care, and felt a peace knowing that only He could give. The Lord showed me in that moment through this experience how to minister to others. Prior to this experience, I have met and grown to love many women that had experienced this pain and never knew what to say or how to show them love, concern, and Christ’s affection for them during this time as well as friends who have been experiencing infertility. You see, my dear friend, who cared enough to be there to say, “I love you, I’m thinking of you, and I’m sorry” not just when it occurred, but months later, helped me through the healing process and “how to deal with our loss.” I don’t think that when you lose a child you ever “deal” with the loss, you only learn how to slowly move on by leaning on family, friends, and most importantly the Lord.

So, the most important things I learned and can share with you from our experience are:
1) God is a God of all comfort therefore cry out to Him! It’s ok to be angry, hurt, and feel abandoned. Our faith grows stronger when we rely on Him and turn to Him, even in our darkest moments.

2) When you lose a child your spouse is dealing with a loss too. During a part of the grieving process I was angry at Andy, my husband; because I felt that he didn’t feel this was a big of a loss as I did. He, in fact, was devastated and didn’t feel he could show it because he wanted to be strong for me. He needed to break down and release his grief as well. Lean on one another during this time.

3) When this happens to someone you know or someone you care deeply about don’t just show them you care in the beginning. Remember times that will mean something to them as well—Mother’s Day, Father’s Day, baby’s due date/birthday. Even if you have experienced a loss, you will never understand exactly how someone else is feeling in their loss. Everyone is different, everyone deals with it differently. Just be there to listen and to show them you care.


4) Know that one day you will hold your little one in heaven. A book given to me, at the Mother’s Day Memorial Service, that helped answer many questions was, “I’ll Hold You in Heaven” by Jack Hayford. I recommend this to anyone experiencing this pain and would like answers and/or a great resource for women who have experienced a miscarriage but also an abortion, stillbirth, and/or early infant death.



5) “Blessed Be the Name of The Lord”—The words to this song ring true every day in my life.
“Every blessing you pour out, I turn back to praise
When the darkness closes in, Lord
Still I will say...Blessed be the name of the Lord
Blessed be your name
Blessed be the name of the Lord
Blessed be your glorious name
You give and take away
You give and take away
My heart will choose to say Lord,
Blessed be your name”

Baby Noah

Posted by  |   at 12:00 AM  
I thought I’d start out by introducing you to my family. Mike and I (Kristin) have been married for 8 years…boy time flies! Our son Trent just turned 6 and Drew will be 4 in September. Our third son, Noah was born December 14, 2006 – 19 months ago. It was August 1, 2006 that I went in for an ultrasound to find out how far along I was. The measurements not only showed I was 15 weeks along, but a large sac of fluid that was growing just above his neck. Noah’s kidneys were also enlarged and cystic. After a myriad of potential diagnosis, our doctor told us the worst case scenario… “he would not survive outside of utero.” I held it together until I heard those words. Was he really talking to me…about my baby? We went to see the high-risk specialist the next day. He gave us a preliminary diagnosis of Meckel Gruber Syndrome, but was not 100% because he thought it was too early to tell for sure. However, Noah already had two of the three diagnostic factors. This syndrome is genetic, so there is a 25% chance for each of our children to have this fatal syndrome. There are only 1:140,000 live births. Another statistic I came across says that it occurs in 1 out of 13,000 pregnancies, but because of the 100% mortality rate many pregnancies are terminated, or “interrupted” as many like to say.
After four months of seeing our doctor every two weeks (and our son by ultrasound!) I went into labor. I was 34 ½ weeks along and Mike and I were on our way to a fancy work Christmas party. Just before dessert, we headed to the hospital and our sitters took the boys to another friends home to sleep for the night. My parents made the 2 ½ hour drive in time to meet their grandson, along with many friends and our pastor and his wife. I never would have planned laboring with SO MANY people in the room, but it was really a time of joyful expectation. (Sounds crazy, I know, but it’s really the truth.) He was alive for 1 hour and 42 min. God had answered the prayer of my heart, to see him alive and love him into his Heavenly Father’s arms. There are so many more things that happened that night, so if you'd like, you can see the memory book I created here. One of my dear friends came to the hospital (I had no camera because we were at the party.) and took 7 rolls of film. Here you can view the video she made for Noah’s memorial service.

My mom started my collection of Willow Tree figurines shortly after we learned about Noah. They are so telling of my journey, I thought I would use them to help illustrate.
Cherish
It was a conscious choice each day to cherish, love, and parent Noah though I couldn’t see him. I felt myself distancing from him emotionally. It just hurt so much and I wanted that to go away. I knew this would be my only time with him. I remember thinking that I didn’t want to start wearing my maternity clothes because it would make my situation all too real. What would I say, and how would I react or respond when people asked me about my pregnancy? How could I possibly experience all the same joy of carrying a baby I knew I would not see grow up? I was reminded that my baby was not dead yet and to think about the regret I might have from not enjoying all aspects of being pregnant.
Angel of Prayer
Never have I prayed so much in my life. As painful as it was to go through, I never experienced such a sweet time of God’s deep love and provision for me. I can approach Him at any time with any praise or burden or request. He has become such a personal God…a lot less abstract.
Never have I felt the prayers of so many, on my behalf, as I did at that time. It is such a humbling thing to be on the other side of a prayer request. I’m usually the one interceding of behalf of others, and now I’m asking for others to do that for my family. Now, when I say “I’m going to pray for you”, you can be assured I mean it! I don’t take that lightly. Knowing family, friends, and strangers were praying for my family brought me much comfort. The body of Christ is such a beautiful thing. It is amazing to experience the arms, feet, mouth, and ears of the body of Christ. We each have a role to perform and when we act on the leading of the Holy Spirit, it is truly a blessing. We also experienced Gal. 6:2 “Carry each other’s burdens.” God gave us understanding friends to share some of our heartache.
Sign of Love
There were many tangible ways in which we felt loved. We received many cards in the mail. I can’t even tell you how much this meant to me…I remember days just watching out the window to see the mail carrier drop off the mail. There were a few other special gifts we received that would obviously honor Noah’s life and keep his memory alive. We were given a special candle with flowers from his service in the wax. We also got a wooden block with the letter ‘N’, his name, and “statistics.” Simple, yet so thoughtful. We proudly display them on top of our piano along with my Willow Tree collection.
A couple of months after we learned of Noah’s diagnosis, I found a support group for perinatal loss that met in our area. This has been a huge blessing for me. Being able to share and remember with other moms who “just knew” how I felt was so helpful. I knew my friends would have done anything to help, but I was paranoid of being the party-pooper. I was also scared of friends distancing themselves for fear of not knowing what to say or how to respond. After losing a child, you are forever changed and I feared losing friendships because of how I would change. In God’s loving kindness and provision, he gave me wonderful friends who have gone out of their way to love and support me in so many ways. God truly is powerful enough to meet my every need, and kind enough to do it!

Loving/Healing Words:
“I’m sorry for your loss.” - “Would you like to talk about it?” – “We love you and we will pray for you.” – “I’m sorry you have to go through this.” – “I know it hurts.” – “I don’t know what to say.”
I actually sent an email to friends and family about 1 month after Noah died… “Even though loosing him is painful, it is worth the pain of missing him to have carried him, seen him, held him, known him, and love him. Only God understands how Noah blessed and added to our lives and the void we feel without him now. Emotions come at any moment and without warning, this makes for some awkwardness, but God has given us hearts that love and care and emotions to feel, so I must give myself permission to let it out. Thanks to many of you who cry with us, offer a hug, or just extend grace through your patience in these moments. We can't thank you enough for the prayers of strength, grace, peace and rest that have sustained us thus far. Our God is gracious to give us what we need, just when we need it! Thank you for your notes and cards of comfort and love for us. We also appreciate the concern you show through calls and conversations at church. I'm sure its hard for you to know what to say or do, I've gone through it and it doesn't make it any easier for me to know what to do or what to say. It does mean so much though, when you step out of your comfort zone to reach out to us. We will never forget his life and so please don't feel you have to avoid mentioning Noah's name for fear of "reminding us of the pain"...knowing you haven't forgotten is a huge encouragement to us. “

Reckless Words:
“You can always have another one.” – “You’re young, you can try again.” – “At least you never got to know them.” – “Be thankful you already have two children.” – “It’s God’s will.” – “Your baby is in a better place.” (Even though these are true, what a mom wants is her baby in her arms. I knew its truth, I just didn’t want to hear it from others who had never experienced a loss.)

Courage
Facing the grief was and is still difficult. Just thinking of “moving on” to a new normal is overwhelming. It is definitely a process and they don’t call it grief WORK for nothing! It was hard to find a balance for my grief and caring for my husband and two other sons. I wanted to “be with”/ “do something for” Noah, after all, if he were here I would be doing that without a second thought. Yet he was gone, my arms were empty, and it felt like the rest of my family demanded more time and energy than ever. I felt that need to still parent and care for Noah in some way. (So, I made a memory book – spending hours pouring each detail of our journey out on paper and staring at his pictures, and I continue to take flowers and pull weeds at his grave.)
Asking the hard questions…I’ve been asked this a few times… “Aren’t you angry with God for doing this to you?” I guess I look at it like this…He didn’t DO this to me. He hurts with me. Noah died because this is a sinful world where sickness and death occur all the time. I’m seeing more and more how God chose to use Noah’s death to draw people closer to Him. It makes Rom. 8:28 a bit easier to grasp. He allows these tragedies in our lives, but he doesn’t create them. In his sovereignty, he causes everything to work out for the good of those who, by faith, choose to trust him. In reading John MacArthur’s book Safe in the Arms of God, I was reminded of Matt. 18:14. “Even so it is not the will of your Father who is in heaven that one of these little ones should perish.” MacArthur suggests that “the analogy of this verse is unmistakable. Jesus was saying that God no more wants a spiritual child to perish eternally than God wants a natural child to perish eternally.” I take comfort in the fact that He didn’t need another “angel” in heaven, and even if he did – he could just have created an angel! He hurts with me.
New Life
This was attached to one of the beautiful flower arrangements we received. I return back to that night…one hour and forty two minutes we spent with our sweet Noah. I couldn’t believe it when our time was up – how I wished he were still with us, and yet, in reality, not even one more minute would have been enough. But I looked down at him and said, “Thank you, thank you!”
I was amazed at the time we were able to parent our dear child. I just remembered being so appreciative of the time we shared. It was above and beyond what I imagined as the reality of our situation. My mom leaned over my shoulder looking at her grandson and whispered, “Who would’ve wanted to miss out on this day!” Again, this confirmed that our choice to carry Noah as long as I could was the best decision we could have made. What a reward, especially for me as his mommy, his safe place to grow and be nurtured and nourished.
Angel's Embrace
Heaven. My “eternal” perspective has been ignited - no longer a flicker of curiosity, but a raging fire. What will it be like? What is it like there now for Noah? Will we recognize each other? Will he be a baby or a different age? Will I even care about these little details when I sit at God the Father’s feet? How do I explain heaven to my other children? I long for my Heavenly home. I pray we would all have a passion for our real home. No more tears…all is made whole and perfect again! I know the angels will embrace you until we see again, Noah.
Remember
I was just telling my friend the other day, I went back to support group for a maintenance tune-up. It has been a couple of months since I’ve attended and I’ve been feeling pretty good. I’m thankful for the freedom to grieve in my own way. Everyone’s journey is different, and that is OK! Remembering for me now doesn’t always mean sadness…there are memories of joy that resonate in my mind. This hole in my heart will never be filled on earth, but in that hole a new hope will be rooted and one day realized…I was encouraged, in my grief, to not rush through any emotion, but to feel it until I didn’t have anything left…and I’m blessed to find THE gracious companion take hold of my hand and pick me back up and continue to walk beside me on this journey. What a marvelous and comforting Savior!
Hope
As I reflect on our experience, I am thankful for the reminder from Isaiah 61:1,3. “He [God] has sent me to bind up the brokenhearted, to proclaim freedom for the captives and release from darkness for the prisoners . . . and provide for those who grieve in Zion – to bestow on them a crown of beauty instead of ashes, the oil of gladness instead of mourning, and a garment of praise instead of a spirit of despair.” The God we read about in the Bible – the God of Abraham, Isaac, Paul, and Timothy – is our same God today. He knows our situation, our feelings, our pain. It doesn’t matter how large or how small, He sees our sorrow. And, just as in the case of these men, we trust Him to create something beautiful in and through us. We sense His healing presence in our life, and are thankful for the opportunities to share our son Noah with others. In many ways, Noah Scott was the canvas through which God displayed His sovereignty and character not only to our family but others as well. We pray that you would experience the blessing of knowing God more deeply.

Lamentations 3:21-25, "This I recall to my mind, Therefore I have hope. The Lord’s lovingkindnesses indeed never cease, For His compassions never fail. They are new every morning; Great is Your faithfulness. 'The Lord is my portion,' says my soul, 'therefore I have hope in Him.' The Lord is good to those who wait for Him, to the person who seeks Him."

My Song and Treasure

Posted by  | Tuesday, July 15, 2008  at 12:00 AM  
Hello POH-ers! My name is Erin, and my path crossed with Leah in 2004, when we went to church together. When we met, I was in the middle of the most difficult trial of my life.
For as long as I can remember, I’ve wanted children. Before it ever occurred to me to ask where babies came from, I assumed that women just had them as part of being female. So I grew up, married, and expected things to go according to the formula my sister had explained to me. When my husband Keith and I agreed that we were ready, three months of laissez faire “trying” achieved the hoped-for pink lines. Thrilled, we told our parents and grandparents, and wrote our first notes to the baby. Immediately after our trip home to share the good news, a 9-week ultrasound indicated two sacs—twins!—but no heartbeats… One sac contained a baby developed to 7 weeks; the other one was empty, though I knew there had been a baby there in the beginning. An appointment the following week would reveal any changes. During that week Keith fasted and prayed, as David did when God said his son would die (2 Sam. 12:16-23). I prayed and cried and prayed and cried. We rallied pray-ers from everywhere, yet nothing changed.
The doctor discussed our options, pushing to remove the babies in order to avoid infection, but willing to let us wait it out. She said it would probably happen on its own in a couple of weeks, and we decided to let nature take its course. First, we knew God could give our babies life, and I believed He might do it as a testimony to the doctors who coldly called them “tissue”. Second, if they remained dead, it was very important to me to give them the honor of a proper burial. I felt I had no real choice but to wait.
That second ultrasound was in late August. As we waited, sore breasts, appetite swings, and tight waistbands gave me a confused sense of hope, yet the bleeding (late September through early November), dashed it. There were several days when I passed unrecognizable clots- one of my babies? Blood tests revealed that the long wait for the birthday was due to the multiple pregnancy. We counted October 12th and 25th as the birthdays, and I was finally “un-pregnant.” We’d waited 10 weeks for this. The doctor smiled and said, “We’ve grieved now. Let’s move on. Hopefully in a few months you’ll have a new start.” I know she meant well.
On October 31, 2004, we buried Song and Treasure under a golden apple tree in our backyard, to remember that they are walking on streets of gold. Immediately after our little service, God graciously let us pour out some pent-up love on fatherless neighborhood kids at our church’s fall festival.
Mulling over the experience, I had to reconcile the pain of miscarriage with my belief that God is all-good and all-powerful, able but not obligated to save my babies’ physical lives. It wasn’t long before I accepted the loss as something I didn’t like but didn’t have to understand. God, in His sovereignty, had His reasons. I was healing. Little by little, however, questions began to surface, questions that could not be ignored. Each one was like an earthquake to my faith, sometimes making me feel helpless as they shook my foundations.
Were the twins really in heaven, or would I never get to hold them? Because of Jesus’ statement: “Let the little children come to Me, and do not forbid them; for of such is the kingdom of heaven” (Mt 19:14); because the stillborn/miscarried child is described as having rest (Ecc 6:5); and because of David’s statement about his dead son: “I will go to him, but he will not return to me” (2 Sam 12:23), I believe that Song and Treasure are in heaven with Jesus. Since I know Him as my Savior, I will get to hold them.
Why did God let us lose our babies? Maybe it allowed us to share in Christ’s sufferings (Phil 3:10) in some way. Perhaps it was an opportunity for my faith to develop endurance, driving me to maturity and completeness (Jam 1:2-3). At the time I felt that the exercise would have been more fruitful if God had actually granted my request. Somehow the ability to comfort others because I’d been through a similar experience (2 Co 1:4) seemed a cheap prize compared to what He could have done, but maybe my faith needed more refining than would have been accomplished by a once-and-for-all miracle. Maybe God’s “higher ways” (Is 55:9) somehow allowed this pain to be good for me.
Why didn’t He answer our prayers? Was the Bible, with all its comforting promises, even true? I wanted a way to back God into a corner and lock Him into giving me my babies. That, however, is the farthest thing imaginable from submitting to my Lord (and His wisdom). Maybe if God had granted my request, it would have been accompanied by a “leanness” of soul (Ps 106:15). My soul was already lean enough.
Did God even care that I was hurting? This was the deepest question, because I felt betrayed by God. It seemed so irreverent to be disappointed with Him, to accuse Him of hurting me, but if I ignored this, I didn’t think I’d ever be able to trust Him with the things that mattered most. My God would have been reduced by my lack of faith to a weaker God than He was before the miscarriage. Strangely, I also felt on the verge of a faith-spurt, if only I could get past this; like a bullet, kicked by the trigger, looking back and asking resentfully, “What was that for?” of the very thing that was meant to propel me to greater purpose, one that might consume me completely. At that point, I didn’t know what might bring resolution.
During the spring of 2005, a motherly friend from church came to listen and pray with me. Dorothy loaned me a book called Praying God’s Word, by Beth Moore. As I worked through each of the verse-prayers of the “Despair” chapter, the grace of God poured down in torrents. Over and over I was reminded through tears that God really did care about me, really did love me, that His compassion is real even when He doesn’t intervene to do what makes most sense to me. It was exactly what I needed, the healing balm that covered my raw emotions and made me feel whole again. My questions were answered, not by logic or a careful explanation of problem verses, but with God Himself, reminding me who He was and that He loved me. Thank You Jesus!
Already I can see some good from the miscarriage. Observing our growing family—we now have Anastasia (born 10/05) and David Keith (born 1/08)—people often ask how many children we want. This is an opportunity. Vulnerably admitting that we have two babies in heaven creates an intimate connection that often allows me to share the truth of Jesus, who offers us the hope of resurrection. “In the sweet by and by,” as the song goes, I will meet Jesus, Song, and Treasure on a beautiful shore beyond the grave. One ministry that helped me during our time of loss offered to publish our story in a book, so it can now comfort others that I will never know. Praise the Lord, for working good despite my babies’ death and despite my own shallow faith.
Hoping this testing time has reduced my selfishness, pride, and fear of losing faith in our all good and all powerful God, and that it has left me as a clearer reflection of God and His grace, I rejoice that He finally moved my heart from doubt to trust. I had made God too small by requiring Him to act to fulfill my dreams. This life is about Him, not me. Now, I am at least growing into a prayer that I hope eventually to say with utmost sincerity: “I trust You with all my heart. I don’t have to understand what You do or don’t do. I acknowledge that You are Lord, even when you allow the curse to touch me in painful ways. I accept Your decisions as best for me. In Your wisdom, direct my path” (Pr 3:5-6).

Verses and other things that helped
Ps 139
Lam 3:22-29, 31-33
Ps 71:19-21
Ps 119:50
Ps 127:3
Ps 145:18-19
2 Sam 21:10
Ps 27:4, 13-14
Mt 19:14
1 Co 15:40, 42-43, 54

The prayers of others, expressed especially through cards, when our faith was too weak to trust
Journaling thoughts, poems, prayers, etc.
Listening ears
The website Sarah's Laughter – sent a “butterfly bag” full of comforting materials
Healing for Empty Arms –an interactive site created by a friend, it features lots of scripture, songs, FAQ’s, ideas for memorializing, how to help a friend going through a loss, a place to post babies’ names and/or dates, etc.
Books:
Disappointment with God- Philip Yancey
Praying God’s Word- Beth Moore
Believing God- Beth Moore
These Strange Ashes- Elisabeth Elliot
Why? Trusting God When You Don’t Understand- Anne Graham Lotz
When Love and Sorrow Embrace: the Sufficiency of God’s Grace through
the Heartache of Miscarriage – Beth Forbus of Sarah’s Laughter (This is
the book that includes our story on pp 69, 79-80.)
Counsel from godly women
Songs:
“Glory Baby” by Nathan and Christy Nockels
“Some Day Soon” by Billy Muller
“Blessed Be the Name” by Tree 63
Packet from Focus on the Family


How we memorialized our babies
Named them
Chose verses for them (Song- Ps 40:3, Treasure- Mt 6:20)
Compiled a memory book including pictures, song lyrics, verses, etc.
Embroidered a blanket for each
Buried them in a decorative box under a golden apple tree- like heaven’s streets
Framed a picture of Jesus holding 2 babies, along with their verses
Completed a “Certificate of Life” for them, from Sarah’s Laughter (see website
above)

One of the poems:

The doctors call you “Tissue,”
not deserving of a name.
But you are more alive than I,
a person, all the same.

They only see the large “yolk sac,”
but Jesus knows you’re two.
My Song, My Treasure, on His lap:
soon I’ll kiss both of you.

And you’ll be strong and bright-eyed
as you laugh, and tell, and show
How Jesus welcomed you with love so wide
to the only home you know.

I am not afraid for you,
but still can’t wait to see
My two sweet children that I never knew
for all eternity.

Losing Gavin

Posted by  | Monday, July 14, 2008  at 5:00 AM  
My name is Angela Kaiser, I was asked to talk about how to deal with the loss of a child, and my answer to that, according to my degree in psychology, is to allow yourself time to move through all five grieving steps. Now, my answer to how to deal with the loss of a child, as a mother who lost my son, is you will never be able to “deal” with the loss of your child on your own. I do not care how strong you think you are, losing a son or daughter at any stage in life is not something you can deal with by following some “grieving steps”; you can, and only can deal with the loss by trusting God. He does know what He is doing and He is in control.

My husband and I had our first three years of marriage completely planned out: He was in his third year of medical school and I was going to support him financially until he graduated. We were going to wait for children until he graduated and we had some money in the bank for the baby needs. Every person wants to feel financially secure, I just wanted to have time for our kid. Well nine months into the marriage SURPRISE we were pregnant. I cried… no balled. This was not our plan, I was not ready. I just got married and I was still learning how to deal with the fact that Jake would leave his shoes in the middle of the floor, and not at the door! To top off the anxiety I was feeling from the shock, I had the worst morning sickness. You could set a watch by my bathroom runs. I threw up the moment I got to work, the second we returned from lunch, once more before returning home, and guaranteed after dinner. And of course the hormones in general make a person go crazy… I found myself sitting on the floor of our kitchen holding a spoon and crying because I couldn’t find an open spot to shove the stupid spoon in the dishwasher.

It didn’t take me long to stop being sad about being pregnant. We had our 15 week check up and heard the heart beat. I choked back tears. It was the most beautiful sound I had ever heard. Jake’s eyes just lit up with excitement. Soon after that I began to feel the little bean move; as we affectionately called our baby. Then the glorious day of finding out the sex of our child arrived; this involved the sick joke to ask a pregnant lady to drink 32 ounces of water for an hour and not release it. I laid there belly up, and saw the tiniest penis… we were having a boy! At least that’s what the technician said. I could honestly not tell for the life of me what I was looking at.



We now had to name the little bugger. This you have to take seriously, it is not like you are naming a beloved dog or cat. No, this person will become somebody, have a dream of their own, and have children of their own. The pressure is awful! We were sitting the car listening to the radio when the band Bush started to play. And the lead singers name is Gavin. We loved it! Gavin, he was Gavin Isaiah Kaiser.

The next couple weeks became easier to deal with. I now looked pregnant, and my appetite returned with a vengeance. I gained 7 pounds in a week! A pound a day, needles to say my Doctor told me to slow down. Everything was amazing, Jake and I were ecstatic about our new unplanned future. We had so many dreams for our son. We dreamed about what kind of friends he would have, what his first word would be, and what his favorite color would be. All those things parents wonder about their little ones.

September 15, 2008 around 2 a.m. I woke up with terrible pains that I thought were just gas pains. I used the restroom and had awful diarrhea. My whole body just flushed everything out. The pain continued, and even got worse, and then I noticed that they were coming in waves and getting closer together. I screamed to my husband, he came in with a stop watch. One minute went by and I had a serious wave of pain rush through my abdomen and my back, then the blood came. Oh how I freaked. I knew at that moment, my son was going to be born. I was just 6 months pregnant. It was way too early. He still needed three more months to cook! What was going on?!

We rushed to the emergency room, they took one look at me, and within five minutes I was being rushed into emergency surgery. I don’t remember much, because it all happened so fast. I just remember lying there on the table as they prepped me. Someone was holding my hand. I had never been so scared in my life, I don’t know who was on the other side holding my hand, but I never wanted to let go. They were asking questions and next thing I know I am awake, asking for my husband and my son. The second I saw Jake, he told me Gavin was okay. He came out screaming, and very healthy considering the circumstances. Relief came all over me. I was determined to see him. Completely drugged we made our way to the NICU. There he was, the smallest in the NICU. He was beautiful. I had never felt such immediate unconditional love, so strong and intense. I hated how he was hooked up to so many machines, and all I could do was stare at him through the glass. He needed me, and I could do absolutely nothing. I was his mother and I was absolutely helpless. Later I was told to start breast pumping so that when he was able to be fed, I could feed him. I began pumping, and let me tell you the pain involved in that. I had no milk; I was just trying to encourage the milk to arrive.



We had so many people come and visit. Many friends and family came by just to squeeze us and see our son. It was amazing having such incredible support. We desperately wanted to show off our precious baby, so that is what we did. Don’t get me wrong, we spent every spare second with our son, but I wanted everybody to see the amazing miracle living in the NICU.



Our first night was awful. Jake slept with me in my bed. We got the first phone call around 2 a.m. The medicine they were giving him to help his lungs was causing bleeding, and he needed a blood transfusion. The second night was worse; he needed another transfusion, which led to another. The third night again around 2 they asked us to make an appointment with the Dr. in the morning.

September 17, 2008 our family sat in a circle with the Doctor. He explained that there are three types of brain bleeds. “Gavin has had a catastrophic brain bleed”. The second I heard that, I lost it. I checked out mentally. He had obviously confused us with a different child. Gavin wasn’t planned… God gave him to us as a surprise… Why is He taking him away?!

Gavin would never be able to breathe on his own, feed himself, walk, talk, if he would even survive. It was up to Jake and me what the next step would be. Having a husband going into the medical field, he had only one thought. We should not be selfish and keep him alive for ourselves. Life is meant to be lived and Gavin was never going to get that chance.

Since we had family and friends there at the hospital, we decided to have a baby dedication service right there in the NICU. The staff was amazing, we were able to hold him, and love on him the way we so desperately needed. Again, we shared Gavin with everybody who wanted to love him. We took up about half of the NICU with our amazing support group. We prayed together, we thanked God that he knew what was going to happen. We then took Gavin off all his machines, and took him back to a room where Jake and I, and our closest group of family and friends, had our last moments with him. Gavin was passed on from person to person, and he arrived back to me. I felt him take his last breath. I saw his little mouth fill with blood. I felt my son die in my arms.



“You watched (Gavin) as (he) was being formed in utter seclusion, as (Gavin) was woven together in the dark of the womb. You saw him before (Gavin) was born. Every day of (Gavin’s) life was recorded in your book. Every moment was laid out before a single day had passed.” Psalm 140:16

How have I dealt with losing my son? I first dove into scripture and gathered as many photos of him as I could and put together a scrap book. This helped me face reality. I think I had the hardest time believing everything that happened was real. I then knew I needed to talk about him, and my feelings, to my husband, and often. We are both the type of people who keep it all inside. Church began to not be a priority. I was personally afraid of going. The times we would visit his parents, and go to church, I was forced to see everybody who came to the hospital, I had to feel. And those feelings were just way too depressing, so I wanted to avoid that at all cost. I have to admit, however, that as much as I say I may have struggled with my faith, I never stopped talking to God. I would have some type of conversation daily. I consistently prayed for individuals: when I would hear an ambulance, I would pray for the people I worked with, I would pray for my husband. I later discovered that I had only lost faith that God would take care of me.

I began to hate my body. I truly felt like the skin I lived in was somehow broken, worthless. I despised both the inside and outside. Pregnancy changes your body, and when I didn’t have my son as proof of why things looked different; I hated that. Time has helped heal this part of my life. I have slowly gotten back to my size, with a few extras, but I no longer am angry when I look in the mirror. I no longer feel frustrated with my womb. This has just recently become okay with me.

Talking with a close friend not to long ago truly helped snap me out of my frustration with God. Jake and I just recently bought a house. He graduated from medical school and got into his first choice residency program. We took a couple to visit the house with us and on our drive back she began asking me questions about my faith. I was completely honest with her. I spoke about how I just wish God would show up. I felt completely abandoned. I no longer needed the “why?” question answered, I just wanted him to be loud in my life. And I couldn’t hear him, or even see his work. She just looked at me like I was crazy. She gave me the “tough love” speech. “Angela, did Jake graduate from Medical School?” my response- “yes”. And she just looked at me like, HELLO GOD?! Then she asked me, “Did Jake get into his first choice for residency?”, again my response- “yes”. Then the kicker… “You just bought a house, in a great neighborhood, with zero problems! How can you tell me you don’t see God in your life?” I had no response. I needed to hear that. God is in every part of my life, I just didn’t want to see it because I needed to be angry with somebody. Anger is easier than feeling the emptiness of not having my son with me. Feelings lie all the time, I had to put everything into perspective. I will always feel deep sorrow from losing Gavin. However, I don’t need to cover those up with anything. I had to recognize that it was perfectly acceptable to be sad. As long as the sadness didn’t become a hindrance in my life, meaning I couldn’t function. The sadness will never go away, and that is okay.

After that “tough love” speech I began throwing myself back into scripture. I have read the story about Noah over and over. I relate to everything in that story. Every time I read the story, God revealed something completely new to me. I began to gain confidence in myself, in God, and in my situation. I related mostly to the sign of the rainbow. I want my own personal sign that everything is in God’s control. I used to think of the rainbow as a promise that God will never do this again to me, but now I think of it as recognizing that God knows what He is doing. He continues to be in my life after the storm.

If you know somebody who has lost a child I recommend praying for them. Just knowing people were praying for us was very much appreciated. You can always give that person a hug, and just say “I am so sorry”. Avoid, at all costs, the “oh well, you are young, you can have another.” Another attempt to make me feel better was, “At least you were able to get pregnant, many people can’t do that.” Again, that is not comforting, and did not lift me up in any way. Avoid pretty much any cliché such as “God works in mysterious ways”, or “God is in control”. Being a Christian, I already understand this. Also please do not preach. I can honestly say I had to hold back punches to the poor UPS man. His intentions were good, but I had just come back to work, from maternity leave, and he insisted on preaching at me. This is not comforting nor is it beneficial. I wish he would have just said, “Can I say a prayer for you right now”… or “I will pray for you”. The best thing you can do is continue to check up on them months after. I had a friend who recently asked how things are now. I nearly broke down, it still hurts, and the fact that she recognized it after months have passed meant so much to me. The number one thing you can do is listen to them. Take time to listen to their story, this is not the time for you to give your opinion or to give advice. I didn’t want peoples’ advice or their opinion, I wanted to be heard. Accept the fact that your words will always fall short. I found when people would take my hand, and pray for me right then and there, was much more comforting.

Going through this experience has been difficult. But I have an incredible husband who has been open and honest with me. I have a tremendous supporting family, both his and mine; I have amazing friends who tell me the truth when I need to hear it, and most importantly, I have a God that has never left my side, and never will.

Related Posts Plugin for WordPress, Blogger...